Supporting people affected by neurofibromatosis NF1-Nf2-Schwannomatosis in alberta
Neurofibromatosis Resources
Our resources aim to educate the global community on neurofibromatosis, and provide resources to those living with NF. As this condition is relatively rare, but not absolutely uncommon (1/3500 people live with NF), it is often those living with NF that must inform and educate the medical and community on our condition.
check out our media and video stories
BORN DIFFERENT
PEOPLE ARE SCARED TO LOOK AT ME
PEOPLE ARE SCARED TO LOOK AT ME
This video shows a day in the life of a couple who both have Neurofibromatosis. Many times, people with Neurofibromatosis do not go out in public as often, many hide their appearance. Tim and Gail get out there and lets their tumours show. They embrace life and encourage others to do the same.
PEOPLE ARE SCARED TO LOOK AT ME
PEOPLE ARE SCARED TO LOOK AT ME
PEOPLE ARE SCARED TO LOOK AT ME
This is the latest video that Tim and Gail were invited to participate in. It is an updated version that provides new perspectives of how we cope with NF. We hope to encourage others to get out and enjoy life. If you have neurofibromatosis, don’t let it keep you from getting out and enjoying your life.