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I MAY HAVE NF,
BUT NF DOESN’T HAVE ME!

You are not alone - reach out!

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How can you help?

 Reach out, ask questions.  People affected with NF are just like everyone else and want the same things in life as you do!

Contact us.

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NF is common, more common than cystic fibrosis, Duchenne's muscular dystrophy and Huntington's disease  combined.


NF is NOT contagious


Our Mission

Building support, awareness and community for those impacted by  neurofibromatosis 1, neurofibromatosis 2 and Schwannomatosis.

Courtney's Blog

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